Since being diagnosed with ASD a few months back, Lizzy and I have been doing everything in our power to stuff Wyatt like a Thanksgiving turkey. The pediatrician has been fearing for a while that the ASD is affecting WVL's growth rate by minimizing his weight gain.
It became pretty obvious when his last checkup at 8 months old, he was still weighing a shade under 15 pounds. He doesn't look super skinny, but his weight gain is still not at a pace that is comforting to the pediatrician. So Lizzy and I returned to the heart specialist this week to make sure the hole hasn't A) gotten bigger and B) created additional problems.
The good news is the hole has not grown. And the murmur is not any lounder or more alarming than it was at the last checkup.
The not so good news is that we've officially been told that Wyatt is not a candidate to have his ASD repaired with the catheterization procedure we were hoping for. So... WVL will have to have open heart surgery when he's around 3 years old. It is scary. And seems so unfair to such a happy child. But we have time to prepare. This procedure has advanced so much that it will be a minimally invasive mini-sternotomy and recovery time is now just a few days versus weeks. Plus, young children are resilient and its a much more preferable time to have the procedure done than if he were a teenager or adult.
So, WVL is still doing great. He's days from crawling forward, loves to stand up and is happy as can be. But for now, we still have this lingering issue of ASD that we can't/shouldn't/won't be able to deal with for a few more years.

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